Help Jenny
There’s a girl in America who suffers from a disease no-one can diagnose, and it’s killing her slowly.
Her family is looking for people with comparable symptoms, who may or may not have had some success with treatments.
These are the symptoms:
- a. Has had similar rapid weakening, going from healthy to paralyzed very quickly
- b. Teenage girl, with recent onset of menses (periods)
- c. Have had similar treatments: IVIG, plasmapheresis, multiple
forms of steroids and Cytoxin (an immunosuppressant), a “mitochondrial
cocktail” of antioxidants, and lithium and riluzole - d. Recent HPV vaccine
- e. Possibly family history of neural diseases, such as seizures and/or palsies
- f. Possibly had an auto-immune condition in the past, such as a rare skin condition like pityriasis lichenoides
- g. Possible heavy-metal exposure, for example aluminum or environmental mercury exposure.
E-mail jenjensfamily@gmail.com if you are a patient, family or physician and recognize these characteristics as being similar.
Her family’s blog is at http://jenjensfamily.blogspot.com/
